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bostanci
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Topic: irrigation Posted: 12 Jul 2010 at 10:48am |
Dear members,
My name is Nadir from Zonguldak,a coal-mining city on the northwest coast of the Turkey.I have been an ostomate for about five years.When I had my rectum removed in 2005,I was told that I would have to wear stoma pouches for the rest of my life.It was then that my world shattered because I was also told that I would not be able to control stool evacuation.At first,I even wanted to put an end to everything.However, later on,I learned how to live with it and tried to find a solution.Then,I heard of bowel irigation and began to practice it.Now,I put a special cap over my stoma every time I irrigate. I have some suggestions for those who opt to irrigate.İrrigate at regular intervals.I usually use 1 and a half litre of water each time.Of course,the amount of water you are supposed to use depends on you weight,your eating habits,etc.,.For some people 1 litre would be enough or even 750 cc.Water temperature is important too.If the water is not warm enough,there is a risk that the water fed into the bowels will not be fully discharged.In that case,always wear a pouch,not a pad.When you start irrigate ,go on wearing pouches for about four to five months more until your bowel movement becomes regular.If you start wearing a stoma cap or pad right after irrigating for the first time,your day may be ruined,especially if you are not sure whether the water you sent into your bowels has not been fully evacuated.This has happened to me on several occasions.You know what I mean.I wish you all a healthy life.
Best regards,
Nadir Bostancı
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Joined: 28 May 2010
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Georges Mom
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Posted: 12 Jul 2010 at 1:10pm |
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Hi! Sticking with your goal for months has brought you so far! Might I ask how often you irrigate? There was another member asking about tips to go 48 hrs between irrigating and I do believe that patience in training what may already be a traumatized bowel is the key!
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Every Chance at a Choice is a Gift...
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Joined: 21 Apr 2010
Location: Ottawa, Ontario
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XP_dkkrh
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Posted: 13 Jul 2010 at 9:58am |
Dear Nadir
Thank you for giving your story about irrigation. I know that has been a previous challenge on irrigation. I should be in the archive - maybe there is something interresting there for your.
For my understanding: Do you irrigate due to your bodyshape or for other reasons ?
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aideesi
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Posted: 13 Jul 2010 at 5:50pm |
Hi Nadir Welcome - it is great to see someone new joining in. This part of the web site is a newly formed support group for general 'chat' about things to do with irrigation. I was also wondering how often you irrigate - using one and a half litre it might be every two days, but maybe not. I have tried to last for two days, but I don't think that I have enough space in my remaining colon for two days of waste, so I have decided to carry on every day because that is working OK. I do agree that training is very important, but so is being properly relaxed, every time, and using the same amount of water at the same temperature. I use the same jug every time and I found an inexpensive digital thermometer with a probe that I use to stir the water and read the temperature - very useful. If I ever try to rush, to take a minimum of time, then that is when I may have an accident - it is much better to get up in time. But if I have any doubt about the success of the irrigation, or I am going somewhere like an office or on a journey where an accident would be too embarrassing then I still wear a small pouch, just in case :-) . Welcome again.
aideesi
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Low rectal carcinoma Apr 09
Radiochemotherapy May/Jun
APER successful Sep 09
Permanent colostomy
Committed irrigator
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Location: Argyll
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Dolly
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Posted: 14 Jul 2010 at 4:49pm |
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Hi guys, nice to have an other irrigator on board, I agree that water temperature is very important, I find that I need it to be just a little bit warmer that advised, I obviously do not use water that is going to burn me, the old Mum's test of bath water is a good test. At the moment, becuase I am under the weather and not eating as normal I am actually going 3 days with my irrigation and when I took ill, I wne for a full week, just waiting to see when my stoma decided to give me some output, mainly because I ended up staying, unexpectedly with my son and wifeand hadn't brought my pump with me. But this answered some questions for me asnd made me more relaxed about what would happen in exactly this type of situation. I know know that output is very much related to input (via ones mouth) as I have always suspected. Those of us who are small eaters (not myself normally) can get away with a longer spell between irrigation.
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You never died a Winter yet!!! Emergency Colostomy Oct 2008. Cause Bacterial infection Actinomycosis.
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Joined: 01 Mar 2009
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Ron Robertson
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Posted: 15 Aug 2010 at 9:01pm |
Hi dolly,
I was going to say hello dolly but that sounds too much like a song.
I irrigate every two days, and have done so for four years now. At first i found it very strange putting all that water in my stoma but now its like second nature. The only problem i found is sometimes if i have overeaten or had something a little spicy I get the runs, it lasts about a day but soon clears up. We are going on holiday for the first time in five years but i,m not looking forward to going realy??. I hate going to any one,s home for more than an overnight stop just because i dont like doing my flush in thier home. i know its silly but i still feel very self concious about it, I cant even go swimming because i hate the though of people looking at me. Sorry to go on so i will leave it thier.
Thanks for letting me bore you.
Keep well and keep going.
Regards Ron. 
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RONNIE
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Dolly
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Posted: 15 Aug 2010 at 11:44pm |
Hi Ronnie, so nice to hear from you,
I know how you feel about staying in strange places and having to irrigate, I think it's actually easier in a hotel room for example than in a friends house as it is more anonymous.
Most of my friends now know that I perform some strange proceedure called irrigation and leave me to get on with it when I am staying with them (the first time in someone elses house is always the worst) I irrigate every second day too and normally that goes without problems, but as you say
diet can affect your output and sometimes when your digestive system is a little bit looser you may find that your stoma is more active. I don't know how you deal with this, but I just put on a normal pouch and irrigate at my normal time. I find that chopping and changin your irrigation schedule doesn't really work. It is ok on odd occasions but to keep doing it on a regular basic really upsets your rythmn.
I swim and although I am still self conscious, I think I am more aware of my body differences than any other person is. We just have to try and ignore our sensitivity about our changed body shape, it really is true that nobody else notices ( most people are too preoccupied with their own faults to notice others!)
An example!!!! I have a scare on my face, it runs from the inner corner of my right eyebow across the top of my eye lid all the way behind my ear. I wake up most morning s and grimace at it in the mirror. The thing is if I point it out to somebody, they say 'what scar?' They havn't even noticed it. It is the same with the time it take to irrigate when in someone elses bathroom and our little caps being visable in our swim wear, we are fretting about them but others really don't notice.
There now, I have bored you, so feel free to natter on at any time, we are hear to share, and I am sure that Aideese feels the same way, it's great to have an other irrigator around and I hope you will keep us up to date with your holiday experiences,
Go out there and enjoy, don't worry, be happy!!!
Best wishes
Dolly
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You never died a Winter yet!!! Emergency Colostomy Oct 2008. Cause Bacterial infection Actinomycosis.
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Joined: 01 Mar 2009
Location: Tenerife/Perthshire
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aideesi
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Posted: 16 Aug 2010 at 11:42am |
Hi Ronnie
Off you go and have a smashing holiday.
If you are a water bag irrigator take a selection of hooks and things - suction hooks are ok for tiles, but you need 'S'-hooks for tops of doors, shower rails and the like, a length of decent string or twine to adjust the height of the water bag and a wire coat hanger to make new things if necessary. Work out how many of your selection of appliances you might need, then take twice as many. Don't forget your water bag and whatever you use to fill it. Take an emergency pack of, say, 20 pouches and wipes and disposal bags in case you get the runs. Maybe two of these? That's it really. All of this goes in cabin baggage if you are flying because you MUST retain control of it. Ask Colostomy Association for one of their neat little travel certificates that explains things in several languages. Don't forget your scissors (hold baggage only - buy more if hold baggage lost). If you take everything with you, you really can't go wrong, but you are unlikely to be able to replace any of this stuff locally overseas. I presume that you have a small 'going out' pack of useful things - take this too, so that you are covered for going out on holiday as well.
Getting up is quicker if you arrange bathroom timeshare - you start with the irrigation bit, next it is your partner's turn while you wait for 'afterthoughts', and then it is your turn again for shower/shave etc. It works.
Get a pair of slightly baggy 'boxer short' style swimmers that reaches above the top of your stoma. The smallest stoma cap that I know of is the Braun Petite (F00015E) and that disappears very effectively under the waistband and does not detach too easily in water. If you have a well behaved stoma and are swimming in the sea, why bother with anything? Put a fresh cap on when you get dry again. NO-ONE will know (or care). Any stranger seeing the top of your scar will quietly think 'Wow, I wonder how far down that goes?' and not say anything.
It's a bit like taking a demanding child on holiday, but if you go well prepared with all the necessary toys then everything will be easy. Go and enjoy.
aideesi
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Low rectal carcinoma Apr 09
Radiochemotherapy May/Jun
APER successful Sep 09
Permanent colostomy
Committed irrigator
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Joined: 28 Oct 2009
Location: Argyll
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Dolly
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Posted: 18 Aug 2010 at 10:47pm |
There you go!!! lots of useful advice from a seasoned traveller and irrigator, hope you enjoy your holiday, have fun
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You never died a Winter yet!!! Emergency Colostomy Oct 2008. Cause Bacterial infection Actinomycosis.
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Joined: 01 Mar 2009
Location: Tenerife/Perthshire
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Bert
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Posted: 19 Aug 2010 at 5:45pm |
From an email:
Originally posted by Ron Robertson
Dear Dolly And Aideesi.
Thanks for getting back to me so quick, I feel a lot better now about going away and I will let you know how it all goes.
And I will keep in touch, its good to know i,m not alone in this.
Thanks again and keep well
Ron.
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1998 colitis
1999 temp. ileostomy & Jpouch
2003 exit J-pouch and end-ileostomy
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Location: Chilliwack BC, Canada
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aideesi
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Posted: 19 Aug 2010 at 10:04pm |
Thank you very much Ron, and Bert as well for moving the post.
Do stay in touch, the more the merrier.
aideesi
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Low rectal carcinoma Apr 09
Radiochemotherapy May/Jun
APER successful Sep 09
Permanent colostomy
Committed irrigator
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Joined: 28 Oct 2009
Location: Argyll
Posts: 76
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